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SPD Parent SHARE Host Guidelines
SPD Parent
S.H.A.R.E.
"Support,
Help,
Advocacy,
Resources,
Education"
Conceptual Base
The
primary knowledge related to intervention of SPD is based on
Occupational Therapy (OT) with a sensory-based approach (e.g. Ayres,
1972). This approach focuses on using sensory based interventions to
improve children’s “occupations” such as learning, playing, sleeping,
relating, behaving appropriately, performing daily routines and
activities and succeeding at school, at home and in the community while
maintaining good self-esteem and achieving maximum potential.
Thus hosts are asked to focus on Occupational Therapy as a primary
method of treatment in discussions with their groups, on the internet,
and on the Host group site, although other forms of treatment may be
discussed, information shared, or presented by experts at meetings.
Communication
We strongly
recommend that every Host obtain a free yahoo identity, on the
Internet, and join our Host Only yahoo group, via email. In this group
site, we have compiled resources and information for Hosts to utilize,
and are personally available for any Host’s questions or concerns. If
that is not possible, communication will be limited. If a fax number
for you is available, we are able to send documents and information
upon request. Otherwise, we will rely on the United States Postal
Service, to provide you with necessary documents and information. This
form of communication will not enable you to utilize education,
training, and support through our online network, but a limited supply
of materials will be available. You will be added to our mailing list
for any free materials sponsors may agree to send to Hosts. And you
will receive a list of suppliers who may be willing to send materials
directly to you.
Rules of Conduct
Our Hosts are expected to
conduct themselves in a courteous and helpful manner. You represent our
National and International group, and as such, your goal is to support,
comfort, educate, and increase awareness of the benefits of therapy for
SPD. There is an expectation
of honesty and integrity within our
group, and any gross violation of trust may result in expulsion from
the group, according to the sole discretion of the Administrator.
Disclaimer
For
the protection of each individual Host and our group as a whole, we use
a legal disclaimer on many documents pertaining to our group, and
always at meetings, advising parents to consult with a professional. We
may also use an individual waiver, if a situation warrants its use. We
seek to educate ourselves fully on SPD and the therapy used as
interventions, and we share our opinions but we cannot suggest
treatment or act as a therapist. We do NOT give out medical advice.
Hence the liability issue must be regarded as important and necessary.
Please
ensure that you identify yourself as follows on any written
communication you make on behalf of your SPD Parent S.H.A.R.E.
meetings, communications, web sites and email unless you are
corresponding with other hosts: (Name), SPD Parent S.H.A.R.E. Host of (City, State).
Host Options
There are
several acceptable venues for a Host to share education, resources, and
awareness throughout their community. Most common, is the formation of
monthly meetings, held at a convenient location of your choice. This is
flexible according to each Host’s availability, and commitment.
A Host may
also choose to do workshops in the area periodically. Guest speakers
are very informative. Establishing an online support group for your
area is another possible option. We will help you create a SHARE
sponsored online group. Direct consults with individual families are
encouraged.
Contacting
the Occupational Therapists in your community, and providing them with
flyers offering to assist the parents when needed is also an option.
Hosts sometimes choose to conduct field trips and special events with
their groups. When meeting with parents, it is advisable to conduct
meetings without children present, however, creative means to
accommodate children, such as certain parents providing childcare at a
nearby location, or on site, but in another room, has proven to be
satisfactory. YOU, as a Host must decide what is right for you, and
schedule yourself accordingly. We will help with meeting formats,
attendance sheets, materials, and topics for discussion. Light
refreshments are always appreciated but by no means mandatory.
Goals
In becoming an SPD Parent S.H.A.R.E Host, you will undoubtedly discover
the joys of bringing awareness and hope to many families. Each family
is important. Each child brought to therapy is a life saved. Our goal
is to spread awareness, information, resources, education and comfort
to SPD families across the Nation.
Please contact us if you want to apply to become a Host!
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